Ginger Galore and So Much More

     Nausea and I don't really get along. Kind of like a tenant who won't pay rent on time, or a dog who always chews your favorite shoes, or maybe rain at an outdoor wedding. Yeah, it's on that level. I wish there was one thing that always worked for me when that dreaded feeling creeps in, but so far it's pretty hit or miss. I do take Zofran (the dissolvable kind) on a daily basis although sometimes the nausea still sweeps in and ruins the day. Sometimes adding one of my many "remedies" can at least take the edge off, so I figured I'd share a few. These are all tips I've picked up over the last couple years from various websites and people, so I can't take credit but just hope to share and help my fellow GPer's or anyone else dealing with nausea.

1) Ginger. I'm sure this is common knowledge to most people, but starting out on this journey I had no idea how many forms of ginger are available so here are a few of my favorites.

-Ginger People: This is a company that makes a large variety of ginger items such as Ginger Chews and GinGins which are ginger CANDIES (so don't go over board!) that are easy to toss in your bag and always have a few on hand since they come individually wrapped. I prefer the Original Ginger Chews but you can buy many different flavors and quantities in bulk here. They also make ginger syrups and minced ginger that can be used to easily add the power of ginger to any of your daily meals.

-Candied Ginger/ Ginger Syrup: This is ginger that has been cooked and comes crystallized (coated in sugar, just really messy in my opinion) or uncrystallized. I usually buy mine from Trader Joe's because they have really great prices. I've also made my own candied ginger before that was really tasty and cooked the remaining liquid down into a syrup. You just cut up your ginger (thin slices or diced) and cook in a simple syrup (equal parts water and sugar, I used one cup of each) until tender. Remove the ginger and lay it out in a single layer to air dry and continue to cook remaining liquid until it's a syrup consistency. I stored mine in the refrigerator and it should be good for a few days at least.

- Ginger Mints: These are like Altoids mints, but ginger flavored and so tasty! I've only tried the Trader Joe's brand and love them. They're pretty strong so I only need a few at a time since too much ginger at once can give me heart burn.

-Ginger Tea: My favorite is Ginger Aid by Traditional Medicinals. I usually add a fennel tea bag also because it helps with bloating and I like the flavors together. Add a little honey and it's perfect!

2) Sea Bands: These are little bands that go on your wrist and have a plastic ball which presses on a pressure point known to help settle nausea. It's great for motion sickness and can help take the edge off during mild nausea flares.

3) Quease Ease: Some smells can help alleviate nausea and the Quease Ease is an aromatherapy inhaler that really does help take the edge off. You just remove the cap and take nice slow breaths in through your nose until the feeling passes. I especially love to use this in cars, but it's useful whenever. It also helps my sister with her migraines and the nausea she gets as a side effect.

4) Ricola Original Cough Drops: Not sure what exactly in these helps me, but sometimes it really helps settle my tummy.

5) Deep Breathing/ Visualization: When I can feel the nausea coming on and I start to panic, it makes it so much worse. Taking the time to close my eyes, breathe deep, and visualize something that makes me happy and calm can really help me get through the worst of it and helps it to pass faster.

That's all for now but if you have any additional suggestions please feel free to share them below. =)

Rocky Days

     Lately GP has been giving me a hard time with my latest flare landed me in the Emergency Room. I can usually push through my daily symptoms to get in enough nutrition to function, but after a few days of not tolerating food or liquids I was so dehydrated I had no choice but to head to the E.R. for fluids and a little Dextrose (a.k.a. sugar water) which had me feeling ten times better. That little sugar rush had me bouncing off the walls! While I was in the hospital I had to make a big decision about my medication, a decision I have been putting off for as long as possible. I had to decide whether I was ready to give Reglan a try.
     Many GP patients have been in the same position and understand what a big decision this can be. There is no cure and very few treatment options for Gastroparesis (many of which are ineffective), so it's easy to go through the safest options fast with little relief. Reglan is not a very favorable treatment option because although it can be effective, it can cause some pretty serious and in some cases permanent side effects. I've read horror stories of people whose lives have been completely changed because of the effects of Reglan. Yet, I've had doctor after doctor suggesting I give it a try. After a little research, I found that yes it can cause some pretty nasty side effects, but short term they are not as likely to occur.
     This still puts me in a difficult position because if the medication does work I could be feeling good for a couple weeks, then feel terrible for the next few weeks while I give my body a break from the Reglan. I guess any break from my symptoms is better that no relief though. Until this last flare I had decided that Reglan was not for me, but when you weigh not being able to eat to using Reglan for just a week to hopefully give my stomach a little jump start, the pros definitely outweigh the cons so I decided to give it a try. A little fluids, I.V. Zofran, Pepcid, and a dose of Reglan later, I was able to drink and eat enough to be discharged. Did I leave at one hundred percent? No. More like fifty percent but it was a huge improvement from the way I (barely) walked in.
     I'm so grateful to have the support of my family and doctors that have done all they can to help me. I'm ready to also acknowledge that to some degree my health is in my own hands. By slowly adding exercise, healthy and nutritious foods, and removing as much stress from my life as I can, I hope to get my health as stable as possible. I saw a quote on Instagram (I can't remember where) that said "The road may be long, but I'll enjoy the walk" that I loved. Whether I like it or not, this is my life at the moment so I'm going to make the best of it=)

It's All In Your Perspective

    

      Almost everyone who looks at this picture will see it for what it is on the outside, baby food. It's understandable considering it's marketed for babies and is sold in the baby aisle. The old saying goes "If it quacks like a duck and walks like a duck, then it must be a duck." Buuuut, if you pop this bad boy in the freezer for 30-60 minutes you know what I see? A quick, delicious, and GP friendly snack or dessert! Having Gastroparesis makes it very difficult for the body to digest fruits and vegetables in their natural state so it's often suggested to try certain fruits and vegetables (low-fat and low-fiber varieties) very well cooked, canned, or pureed (aka baby food). When this was first suggested to me, I was pretty turned off because honestly who want's to go from eating normal food and a mainly paleo diet to baby food? Not this girl, but as much as I love the idea of mind over matter I had to admit that my tummy is in control of my food choices for the time being. That doesn't mean what I eat can't be enjoyable though, so I went on the hunt for things that I could eat.

     On Pinterest there are a lot of boards for GP friendly meal ideas that are very helpful and that is where I ran across the idea for the frozen baby foods. The original website actually suggested this as a low calorie alternative to ice cream and considering they are gluten free, dairy free, low-fat, and free of added sugars, they're a pretty good option (GPer do need to be aware of fiber content though as some can have as much as 3 grams!). Plus, they're usually packaged in 4-6 oz containers so they have built in portion control and the glass containers can be washed and reused for storing homemade purees, I'd definantly call that a win. It's probably best to stick with fruit mixes that use banana as a base as it creates a great creamy consistency that is a lot like regular ice cream or sorbet, but if you have success with over flavors feel free to share your thoughts and experiences in the comment section below. If you happen to leave it in the freezer to long (or do like I do and always have a couple in there for to cut out the wait time) and it's more icy than creamy, just let it sit on the counter for five to ten minutes and it should be perfect. I can only imagine that if this little tip is so enjoyable to me, that babies would love it too as a refreshing surprise on a nice hot day, so show your little ones some love and treat them also to this yummy way to add fruits and nutrients to any diet.=)

Hi, My Name's Simon'e and I'm A Spoonie.

     Having Gastroparesis is...interesting. It's considered an invisible illness because the symptoms can't be seen just looking at me and this fact has it's pros and cons. For example, on a good day I can pretend I'm normal. I can go out with my friends and not have people staring or judging me. People who don't know me or my story don't treat me weird or ask a bajillion questions. Sometimes it's nice to forget about my pain and daily struggles even if it's just for a little while. On a bad day though, my main symptoms may be invisible to most, but the trickle down effects every aspect of my life. There are times that I'm hardly able to eat for days causing my body to be weak and my mind to move slow. It's like trying to swim in a pool full of peanut butter and absolutely exhausting.

     So I'm sure you can imagine that on my good days I used to try to take full advantage and do all that I could, but that's where this Spoonie thing comes into play. As much as I want to do all of the things that I used to be able to do, my "spoons" are limited. The Spoon Theory was accidentally created by a woman who was chronically ill and asked by a close friend "what's it like?" She grabbed a bunch of spoons and handed them to her friend. She went on to explain that most people start the day with an unlimited amount of spoons while people who are chronically ill start their days with a limited amount, and it varies from day to day. EVERYTHING that we do in a day must be carefully thought out in advance because even the simplest task can use a spoon or two and when you're starting the day with only ten for example, they can go pretty fast.

     Before I read about The Spoon Theory, I had trouble accepting this as my new reality. I'd work myself until I was exhausted trying to live my life like I used to and then spend the next two to three days worn out. When my family would tell me to take it slow and offer assistance, I'd proudly refuse. I'd never needed the help before and in my mind I was the same person I had always been, why did they think I suddenly needed help all the time? After learning about it though, I was finally able to take a step back and realize that accepting my new Spoonie status didn't have to me that I liked it, and I may do less but I'm not useless. I've learned to do the best that I can at a slower pace than I used to and that my family is more than happy and willing to help me when I need it. On the way home from my last vacation, my family and I where stuck in an airport for three days and they pushed me around that airport on wheel chairs and luggage carts the whole time and as tired as they were, they never complained or made me feel bad about it. If you ask me that's some real love right there=)

     Trying to live at my new "normal" is still a daily struggle that some days I win and some days I lose, but each day I learn. I'm learning to be patient with myself and others, to speak up, and to appreciate the small accomplishments in each day. Sometimes it's the little things, like checking off a box on your to-do list or a small act of kindness, that can really keep you going through the tough times.